Our goal is to find a group of researchers to work on a therapy for CNTNAP1.
In order to fund this research, we will collect donations from people and organizations.
We will gain as much knowledge from various researchers around the world so that we may be better informed about different therapies as well as the gain more knowledge about the CNTNAP1 mutation.
We are hopeful that Gene Therapy, Base Editing or Stemcell Therapy will help our children fight against this genetic disorder.
They all deserve to experience the world and make the most of life.
WE WILL NOT REST UNTIL WE FIND A CURE
We are now working toghether with Dr. Pankaj B. Agrawal, who has worked with CNTNAP1 before. He will now begin to work on finding a treatment for it.
Dr. Agrawal holds many titles and we are honored to be working with him. He is based out of Boston Children's Hospital and can be contacted via email at
Other researchers who are currently interested in working on this project are:
Niren Murthy - Nmurthy@berkeley.edu
Ronald Klein - Klein@lsuhsc.edu
Troy Lund - Lundx072@umn.edu
Cat Lutz - Cat.firstname.lastname@example.org
David R. Liu -Drliu@fas.harvard.edu
Johanna Schmidt - email@example.com
Xingxu Huang - firstname.lastname@example.org
Steven - email@example.com
Lawrence Steinman - firstname.lastname@example.org
Brian Hanley - email@example.com
Odile Boespflug - Odile.firstname.lastname@example.org
Richard Qing Lu - Richard.Lu@cchmc.org
First they start with enrollment, then understanding the disease better, work on gene therapy approach using mice first followed by human clinical trial and meanwhile create iPS cells to recreate the disease and potentially try other therapies.
IF YOU WICH TO SUPPORT THIS PROJECT FINANCIALLY
YOU WILL GET THIS CERTIFICATE WITH ALL THE FIELDS FILLED OUT AND STAMPLET.
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